22qMinded

Welcome to 22qMinded, where we bring over two decades of scientific and clinical expertise to support individuals and families dealing with 22q11.2 deletion and duplication syndrome (22q11DS).

If you or your loved one has 22q11DS and you’re seeking understanding and guidance, we’re here for you. Whether you’re navigating daily challenges or seeking insights into how 22q11DS affects your life, we’re ready to help.

Do you have 22q11DS and are you facing difficulties at school or work and want to uncover the reasons behind it? Are relationship issues causing stress, and you want to better understand your needs and those of others? Or maybe you’re looking for ways to manage stress more effectively. At 22qMinded we can help you explore new coping strategies.

If you’re a parent with a child who has 22q11DS and need support, our team is here to address your unique concerns. From your child’s development to understanding their behaviour, acceptance, and making important decisions, we’re here to assist. If your child has faced challenging experiences in healthcare, school, or work, impacting their emotions or behaviour, we can help. And for parents juggling multiple responsibilities, we can explore coping strategies together.

At 22qMinded, we’re dedicated to providing the psychological support and insights you need to navigate the complexities of 22q11DS and improve the quality of life for you and your loved ones. Feel free to reach out to Sasja (located in The Netherlands, speaks Dutch and English) or Linda (located in Australia, speaks English and Swedish).

For parents or caregivers of children with 22q11DS, we offer our Care4Parents, an online parenting training program. This 8-week online program makes room for you as a parent, addressing your needs and concerns in your parenting journey.

This practical online course combines psychoeducation about parenting with hands-on practice in relatable situations specific to parents of children with 22q11DS. We delve into relatable situations that are specific to parents of children with 22q11DS, like handling repetitive questions or understanding why there is such a big difference in behaviour between your child at school and at home, We understand the themes that come with parenting a child with 22q11DS.

While your child’s condition or behaviour can be a significant source of stress, this training is designed to help you navigate, understand and manage what this stress does to you as a parent. Learning that you can’t always change the situation but you can influence how you relate to it. The training is also an opportunity to connect with other parents, learn, and grow together.

For more information, visit 4ParentMinds. Keep an eye on our schedule for upcoming online trainings, and take a step towards supporting yourself as a parent.

We understand that scientific articles can be challenging to grasp, which is why we make it easier for you. At 22qMinded, we offer simplified ‘translations’ of pertinent scientific papers on our website. This allows you to select what interests you and delve deeper into those topics.

So, whether you’ve come across an article that’s tough to decipher or you’re curious about specific research, we’re here to assist you. Reach out, and we’ll help you make sense of it all. Your understanding and curiosity matter to us, and we’re committed to making science accessible to everyone.

At 22qMinded, we’re dedicated to simplifying the complex world of psychology-related 22q11DS topics. We offer workshops and training sessions that break down the intricacies of psychological aspects of 22q11DS conditions into understandable and actionable insights. Whether you’re a caregiver, healthcare professional, or simply curious, our training programs provide you with the knowledge and skills you need to navigate the world of 22q11DS with confidence.